Thursday, April 21, 2011

Cousins are the BEST. Cole was being funny and kept closing his eyes.
I cant get a decent picture right now. We were flying Lily's birthday kite on Tuesday. Cole and Lil got sun burned. Clay wasn't out long enough to get burned just a little color.
A migraine. Yuck
He has this cute mischievous smile right now. I love seeing it.Boys being boys. Tramp basketball. Even Clay was on the tramp (against my wishes).

I am so sorry I haven't posted in over a week. Keeping up with Clays cleaning schedule and meds is kickn my butt. every day I get to clean clean and more cleaning. The other thing that is rough eight now is the 34 pills a day, yep you read that right 34 pills a day. He takes them over about an hour. 17 pills in the morning and 17 pills at night. He also is taking an additional anti nausea pill before each dose. We are hoping at the doctor appt Friday they are able to lower one of the meds but I don't think that will happen for a couple of weeks.
Let me bring you up to speed....
This week has been great. We have hung around the house and have really made it feel like home. Tad brought the kids up to visit and left them here for Spring Break. Cole and Lil have been great for Clay, even though they fight all the time, they are great morale boosters.
Wednesday we had our first outing. We went to Nick and Heathers (cousins of Tad) they have 4 kids and were all healthy and happy. That wore all the kids out. It was nice to talk to Heather and catch up on the family gossip. Yep, that's right we talked about You. No we didn't we just chatted about how every one is doing and how the kiddlets are. Today, Thursday, we had my cousins Maggie and Amy over. It was alot of fun. Grandma took all but Clay to the re center to go swimming. When they came back everyone went to the park down the street to play softball. As soon as it started blowing all the kids yelled for Clay to put on his mask and they all ran home. I'm glad they were protective of him and watching out for him. He is having a hard time feeling included because there are things he just cant do yet and he gets tired super fast. The kids all saw he was done and they rested with him. I wish I would have taken a couple pics of them together today. Oh well.
This weekend is Easter and it is weird not being in my own home dying eggs and having Easter Egg hunts. We re making the best of it. Sat Tiff and the kids are coming to Grandmas and dying eggs. Grandma says she hasn't done that in like 20 years. This should be fun. Sunday we are headed to Lehi for dinner with Tiff her family, Mom and John, and hopefully Nicki, Steve, Alecia and her family. We have to make sure Alex is healthy by then. We shall see. everything now a days is We shall see.
On the food front, Clay has been eating a little. Baby steps is what we are saying. It was quite an achievement on Tuesday when he sat down with us and grabbed 3 slices of cucumbers. He ate each and every one of them. Then yesterday we made Tune Noodle Casserole for dinner and he ate about a 1/4 of a cup of that. Tonight we had chicken and rice he ate almost a cup. I don't know if you are reading this with inflection but I am ecstatic. I have been doing the happy dance every night. He is still not eating breakfast or lunch, but hey, Ill take dinner. He has been able to keep all of it down as well. Last night we had a hard time but it was his meds that caused the throw up not dinner.
So for those of you who are worried, we are doing GREAT, FANTASTIC, AWESOME!!!
On a side note. Clays friend Tanner is doing good too. He has two friends we are praying for right now. Nathan, He was readmitted earlier this week and we hope he can go home again soon. Also Nelson, He is having his Bone Marrow Transplant either Friday or Monday. Good luck Nelson!!!
Love to all and we miss you all a ton. Thanks for the prayers and the many blessings you have brought to not only Clay and myself but to my whole family.
Loves, Tab, Cole, Clay and Lily

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