Here We Go Again

It has been a while since I have posted and for that I am sorry. But as you all know, no news is good news. We are at day 54 for those of you keeping track. I am I cant wait for day 100 to come so we can go back to Vegas. Clay feels the same way, his friends all keep texting him to come back home before the end of the school year. That's not going to happen, oh well. He likes talking to his friends and keeping up with the latest gossip and the scores from the soccer games and stuff like that.

So, last Friday I expressed some concern for how much Clay was having bowel movements and still was not eating. The NP agreed with me and also his blood counts were dropping in some areas and rising in others (not a good combo). So they scheduled Clay for two scopes an Endoscopy and a Colonoscopy. The docs are looking for a thing called Graft Vs Host. It is where the old battles the new. Yes there is still old cells in him, not too many but enough to be causing problems. The GVH is in the stomach lining and it is causing some mild to moderate discomfort. The good news is he is absorbing his meds and some nutrition, he has a lot of energy, and his skin is looking great. With that being said they think if there is a GVH going on in his belly it is probably mild and can be treated with steroids at home with some very close care by the home health nurse and the docs at clinic. He also had some blood work done to rule out several other things. There are no infection in his body, no staff, no bacterial or viral. So other than the lack of eating and the severe bowel movements he is doing well. Clay is in good spirits and isn't too worried about the scopes. The Child Life person spoke to Clay yesterday and explained what the procedure was and what the do. He feels at ease and is okay with all of it now. Hopefully we should know more by the end of tomorrow and can go home. The docs admitted Clay yesterday (Monday) because he needed some platelets and just to give us a good night sleep on the luxurious fourth floor. They are going to watch him for 24 hours after for bleeding and any new signs of GVH so we should be able to go home on Wednesday (Tads birthday) with a plan of action.

We are good here and are gratful to all the people who have taken such good care of us while we were out of the hospital.

I pray the surgeons hands are steady and in the end we have a plan and are ready to move on.

Thanks for all who have put his name on the prayer rolls what ever affilation you have. We have been so blessed up unitl now and we will continue to be blessed and be gratful for it.

Love,

Tab